Raising awareness without a specific call to action may be pointless. In fact, many disabled adults are asking us, parents of disabled kids, to “stop raising awareness for awareness sake.” This kind of passive social action can cause more harm than good.
Awareness Days Awareness Read More »
(TW: seizures, SUDEP, child loss) This is the beginning of Avery’s epilepsy story. She offers her thoughts at the end of this post.
How To Support People With Epilepsy—On Purple Day And Every Day Read More »
Today is Rare Disease Day. Rare diseases are more common than you might think. This girl is rare and proudly rocking her stripes to show it.
Rare Disease Day—Rare Is Everywhere Read More »
