My Daughter May Never Be A Mother
I understand how incredible it is to be a mother, so it hurts to know my daughter may never have the privilege.
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Genetics
Awareness Days Awareness
Raising awareness without a specific call to action may be pointless. In fact, many disabled adults are asking us, parents of disabled kids, to “stop raising awareness for awareness sake.” This kind of passive social action can cause more harm than good.
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Rare Disease Day—Rare Is Everywhere
Today is Rare Disease Day. Rare diseases are more common than you might think. This girl is rare and proudly rocking her stripes to show it.
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